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FACIT Searchable Library and Custom Form Developer (Build-a-PRO)

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Search the library

Use the search function to find FACIT measures or individual items. In the search results, click on the measure name or individual item name to view more details, including language availability.

Build-a-PRO

Build a custom patient-reported outcome (PRO) form using individual FACIT items.

Use the search function to find FACIT individual items. Select items for your form, sort by order of appearance, add subscale heading(s), and click a button to generate a formatted copy of your custom PRO form (available in English only).

PLEASE NOTE: Be sure to save form to your computer. Selected custom form items and the custom forms you generate will not be saved in your account, even if you are logged-in.

Learn how to create a custom form

Registration and Requests

Register for permission to use a FACIT measure or custom form, or request non-English translations. Search the library and add items to your shopping cart, then click on your cart to register for permission to use a FACIT measure/item and/or request non-English language translations. Please note: there may be fees for use of non-English versions.

Learn more about our translation methodology

All FACIT measures and items from the FACIT Measurement System follow an established FACIT Multilingual Translation Methodology,1,2 which was developed and validated to ensure that resulting translations of quantitative measures reflect conceptual equivalence with the source document rendered in language that is culturally acceptable and relevant to the target population, and is consistent with consensus opinion3. This rigorous methodology requires two forward translations into the target language by native speakers, a reconciled version of the two forward translations done by a third independent translator who is a native speaker of the target language, a back-translation of the reconciled version by an English speaker fluent in the target language, harmonization of the translation with other languages, and review/finalization by a native speaking linguist or HRQL research expert. After the translation phase is completed, items are linguistically validated by testing with patients to confirm the suitability of the translations for the target patient population.

1 Bonomi, A. E., Cella, D.F., Hahn, E.A., Bjordal, K., Sperner-Unterweger, B., Gangeri, L., Bergman, B., Willems-Groot, J., Hanquet, P., and Zittoun, R. (1996). Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Qual. Life. Res. 5:309-320.

2 Eremenco, S., Cella, D., & Arnold, B. J. (2005). A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation and the Health Professions, 28: 212-232.

3 Wild, D., Grove, A., Martin, M., Eremenco, S., Ford, S., Verjee-Lorenz, A. et al. (2005). Principles of good practice for the translation and cultural adaptation process for patient reported outcomes (PRO) measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation. Value in Health, 8(2): 94-104.

Learn more about our methodology

Privacy Notice

This privacy notice discloses the privacy practices for www.facit.org and www.wizard.facit.org. This privacy notice applies solely to information collected by these Websites and hereby notifies you of the following:

  1. What personally identifiable information is collected from you through the website, how it is used and with whom it may be shared.
  2. What choices are available to you regarding the use of your data.
  3. The security procedures in place to protect the misuse of your information.
  4. How you can correct any inaccuracies in the information or remove your data completely.

Information Collection, Use, and Sharing

FACIT.org (“We”, “us” or “our”) is the sole owner and operator of the information collected on www.facit.org and www.wizard.facit.org. We only have access to, and only collect information that you voluntarily give us via email, registration on the website, or other direct contact from you. We will not sell or rent this information to anyone. We will use your information to respond to your request(s). We will maintain this information in our internal confidential database, for our own record keeping purposes. We will not share your information with any third party outside of our organization, or yours. We will not use this information for any other purposes short of tracking usage of the FACIT items or scales; we will not solicit you for any reason.

Access to and Control Over your Information

You may opt out of any future contacts from us at any time. You can do the following at any time by contacting us via the email address or phone number given on our website:

  1. See what data we have about you or your FACIT scale/item usage, if any.
  2. Change/correct/remove any data we have about you or your request for a FACIT scale or item.
  3. Express any concern you have about our use of your data.

Security

We take precautions to protect your information. When you submit sensitive information via the website, your information is protected via secure internet servers. We also protect your information offline. Only employees who need the information to perform a specific job (for example, invoicing or responding to customer requests) are granted access to personally identifiable information.

Registration

In order to utilize the FACIT scales or individual items on this website, a user must first complete the registration form. During registration, a user is required to give certain information (such as name and email address). This information is used to contact you about the products/services on our site in which you have expressed interest. This registration ensures that we have a comprehensive listing of how and which FACIT items and scales are being used.